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So, yesterday at the beach I woke up sick again, after having rice, bananas, and several bites of cantaloupe, and two different kinds of ginger ale.
Once I got my appetite back, I had more rice crackers, then I ate the gratin we made last week for dinner (a very small piece).
Today I woke up fine, except I didn't really have an appetite. Then I ate some more rice crackers (good thing I like them) and have been drinking water and doing laundry. (I also typed up my notes into a spreadsheet so the doctor won't have to deal with my handwriting next week. I should also type up as much of a history of this thing as I can remember, including the night I went to Sage with A and ended up getting my food to go. Which was back in April I think.)
I'm getting hungry, but I don't know what I can/should eat. There's plenty of food in the house; I have no idea what's going to make me sick tomorrow, or even if it's related to food AT ALL. The blood panels should come back sometime this week, hopefully sooner than later. (I asked my friend K, who works at LabCorp, and he said the test takes a day to run, but they wait until they get enough samples to run a kit, which is why it takes 4-5 days to get the test done.)
It's disheartening, because I have days like Saturday and today, where I'm fine, and I don't feel sick, and I can go about my normal business, then there's Thursday, Friday, and Sunday, where I'm awful in the morning and fine in the afternoon. There's a pilates class I want to take at the yoga studio up the street. It's at 9 am Tues/Thurs, or 10:30 Fri. Today I could make it, but I have no idea about tomorrow.
There's a huge anxiety component with this thing.
I'm also getting irritated with expressions of sympathy that compare it to some self-limiting illness they had this one time. My instincts (all pessimistic, naturally) are telling me this is going to be a PERMANENT issue now, and I'm going to have to make a lot of changes. [The friend who had cancer and talked about how radiation and chemo gave her horrible n/v/d? I think she understands.] Yes, I'm glad you're expressing sympathy. Comparing this whatever that's been going on for two months now to the time you got the stomach "flu" and felt bad for a week? Or had food poisoning? Kind of misses the point.
This is like food poisoning or viral gastroenteritis (influenza viruses do not infect the GI tract; yes, I'm an infectious disease nerd) that hits repeatedly, and almost daily, gives the slimmest hope by the end of the day that tomorrow will be normal again, then cruelly shreds that hope.
Once I got my appetite back, I had more rice crackers, then I ate the gratin we made last week for dinner (a very small piece).
Today I woke up fine, except I didn't really have an appetite. Then I ate some more rice crackers (good thing I like them) and have been drinking water and doing laundry. (I also typed up my notes into a spreadsheet so the doctor won't have to deal with my handwriting next week. I should also type up as much of a history of this thing as I can remember, including the night I went to Sage with A and ended up getting my food to go. Which was back in April I think.)
I'm getting hungry, but I don't know what I can/should eat. There's plenty of food in the house; I have no idea what's going to make me sick tomorrow, or even if it's related to food AT ALL. The blood panels should come back sometime this week, hopefully sooner than later. (I asked my friend K, who works at LabCorp, and he said the test takes a day to run, but they wait until they get enough samples to run a kit, which is why it takes 4-5 days to get the test done.)
It's disheartening, because I have days like Saturday and today, where I'm fine, and I don't feel sick, and I can go about my normal business, then there's Thursday, Friday, and Sunday, where I'm awful in the morning and fine in the afternoon. There's a pilates class I want to take at the yoga studio up the street. It's at 9 am Tues/Thurs, or 10:30 Fri. Today I could make it, but I have no idea about tomorrow.
There's a huge anxiety component with this thing.
I'm also getting irritated with expressions of sympathy that compare it to some self-limiting illness they had this one time. My instincts (all pessimistic, naturally) are telling me this is going to be a PERMANENT issue now, and I'm going to have to make a lot of changes. [The friend who had cancer and talked about how radiation and chemo gave her horrible n/v/d? I think she understands.] Yes, I'm glad you're expressing sympathy. Comparing this whatever that's been going on for two months now to the time you got the stomach "flu" and felt bad for a week? Or had food poisoning? Kind of misses the point.
This is like food poisoning or viral gastroenteritis (influenza viruses do not infect the GI tract; yes, I'm an infectious disease nerd) that hits repeatedly, and almost daily, gives the slimmest hope by the end of the day that tomorrow will be normal again, then cruelly shreds that hope.
Brainstorming: time of eating?
Date: 2010-08-16 05:11 pm (UTC)From:For women who get it, eating crackers just before bed and each time they wake up in the middle of the night eating a few more, helps reduce symptoms quite a bit. I don't know if that has any bearing on your condition at all, but it's just a brainstorm because it's hard to watch friends suffer and not be able to do anything.
--Beth
Re: Brainstorming: time of eating?
Date: 2010-08-16 06:02 pm (UTC)From:It's seriously mindboggling.