feuervogel | Updates

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Updates

We lost Claire a few weeks ago. It hurt too much to write about, so I didn't. It was very sudden; she had a blood clot, and there was nothing we could do.

My GP agrees with me that I have Raynaud's and probably some form of Ehlers-Danlos (hypermobility type).

I should be hearing back about grad school soon. Russian class is going well.

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Gah, I'm so sorry about Claire. (I know I said it on FB, but the clarification just makes me even more sympathetic.)

Oog. Is your GP going to try to persuade your insurance company to pay for genetic testing? Or do you have to find a specialist for that?

Thanks. She was the Best Cat.

She can refer me to a guy at Duke who's an EDS expert, but since there's not any treatment except PT/strength training, there's not much point. Except confirmation that I don't have the vascular type, I suppose. I'm not a candidate for any of the SNS drugs (beta blockers, Ca-channel blockers, etc) because my blood pressure can't tolerate it. It was 92/54 in the office yesterday, whee.

And our insurance is almost certainly changing come May, when Ben's job closes. Whether we get on a new corporate plan or go on the pretty shitty Obamacare plans here (none of the BCBS ones include any of my doctors! But all the corporate ones do; the alternative is United, the HMO, which doesn't have any out-of-area coverage, and fuck that.)