I am so sorry you're going through this. I hope you figure out what it is soon, and that it is something treatable, or at least something you can get managed somehow.

I have had my gallbladder out, and others who've also had theirs out after a long, miserable battle with gallbladder attacks can tell you what a relief it is, if that turns out to be the real cause. I've also had IBS symptoms for years, and only in the past year have I finally identified the triggers and been able to reduce the symptoms. There is no misery like GI misery. I sincerely sympathize with your suffering, and hope there is a solution just around the corner for you.